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Help Dave fight ALS!

Hi there, my name is Dave Janisse and I am asking for your help. I have ALS, Lou Gehrig’s Disease, which is prohibitively expensive and I will need financial support to continue my journey. Click on that YouTube video on the right (or below on mobile) for a 3 minute introduction from me. Scroll down for testimonials about who I am and why you should consider donating, learn more about me and ALS by watching a few YouTube videos, or click on the My ALS Journey tab for a deep dive into ALS. Thanks so much for being here. Appreciate you!

Featured Videos

Get to Know Dave and ALS

Follow Dave on YouTube

Video featuring Dave's personality 
before ALS took his voice.

Dave and Casey were on a train in Italy and Dave describes some funny moments. They booked a tremendous three week adventure starting in Rome and ending in Dublin so they could be at Union Chapel in London to see Andrew McMahon perform Konstantine acoustic in a candlelit church. Best concert moment ever!

ALS Announcement

This is the video Dave made announcing his diagnosis publicly in December of ’24. Here is an excerpt from his Shutterfly book describing the decision on when to make the announcement: As mentioned earlier, early on, I decided to keep my diagnosis a secret. I waited until December 8, 2024 to make a public announcement. By that time, I knew what my progression timeline was, and I had done all I could to be ready for this fight.

ALS Overview - How It Started 

In this video, Dave outlines his early symptoms and struggles to find out what was wrong.

Dave's ALS Progression

In this video, Dave outlines details of how ALS progressed for him in the first several months after diagnosis.

Dave is HOTTOGO

On November 11th, 2024, Dave took a break from physical therapy to do the Hot To Go dance. At this point ALS was starting to impact his arms but he keeps up pretty well and you can see his infectious personality shine through!

Skydiving with ALS?

Dave decided early on that he was going to do everything in his power to keep living a full life. On June 1st of 2025, he did what most people thought was impossible and went skydiving! Even though he is basically paralyzed, the team at Skydive Chicago hooked him up in a special quadriplegic harness and took him up to 14,000 feet for this once in a lifetime opportunity. #fuckals!

Leo Burnett Career Recap - Happy Retirement!

Dave’s coworkers got together to wish him well in his retirement. Dave absolutely loved his time with everyone featured in this video and his career at Digitas / Leo Burnett!

Progression Update - September 2025

Dave and Stephy give an update using Dave’s new digital voice.

Dave Talks Falling and Fears

In this very emotional and raw video Dave recorded right after a fall, he describes how scary each fall is and general frustrations with ALS.

Dave's Physical Therapy

Introducing Mel, Dave’s amazing physical therapist! In this video, Mel discusses and demonstrates the importance of range of motion exercises for ALS patients. She also explains Dave’s AFO boots that help keep his ankles at a 90 degree angle.

Testimonials

Why You Should Donate

The messages below are from Dave’s family and friends. If you would like to have a message included, just send it to [email protected] and mention that you want it included on the website.

Rated 5 out of 5

I’ve known Dave for about 20 years—we met at ePrize, an ad agency sort of start up where we worked crazy hours, long days, and more than a few weekends—and that time together is really where our friendship was built. When you’re in the trenches like that, you either keep your head down or you connect with the people around you. Dave made sure it was the latter. And if you know me, you know I’m not exactly the most social guy. I’m perfectly content staying in, doing my own thing. Dave is the opposite of that in every way, and honestly, that’s one of the best things that’s ever happened to me.

Dave is the reason I didn’t just sit on the sidelines of life. He pulled me into roller hockey, ice hockey, volleyball, bowling, curling, and even paintball. He tried to get me into kickball too, but I had to draw the line somewhere. He’s the kind of guy who doesn’t just invite you—he makes sure you show up.

We’ve spent countless hours together just sharing music—loud music—jumping from death metal to 90s hip hop to electronic to pop, and somehow even landed on country for a while. We actually created “Country Music Video Bingo,” complete with homemade cards, which probably tells you everything you need to know about how Dave approaches life: creatively, enthusiastically, and always finding a way to make things more fun.

But it’s not just the fun stuff. Dave shows up when it matters. We’ve worked side by side on just about every kind of home project you can think of—decks, balconies, tile, electrical, plumbing, insulation. Even when I wasn’t exactly excited to take something on, Dave would be right there saying, “let’s get ’er done,” tools in hand, ready to help without hesitation.

That’s who Dave is at his core. He shows up. For everything. For everyone. And more often than not, he’s the reason everyone else shows up too.

I was proud to stand next to him as his best man, but more importantly, I’ve been lucky to stand beside him as a friend. Whether it was late nights playing bubble hockey, throwing back questionable shots, capturing squirrels (and releasing them), or teaming up on Call of Duty during COVID after he convinced my wife I needed a PS5 so we could still “hang out,” Dave has always found ways to bring people together—whether you realized it at the time or not, a lot of us were in the same room, on the same team, or still connected because Dave made it happen.

And he doesn’t just show up socially—he shows up when people truly need it. He’s opened his home to friends going through tough times. He’s helped people financially when they were struggling. He bought a house next to his parents so he could be there for them as they needed more support. He volunteers without being asked, organizes leagues and events, and even started an annual fundraiser for the family of a friend we lost too soon.

Dave has spent his life stepping up for the people around him.

Now it’s our turn.

If you’re reading this, I’d ask you to consider helping Dave in whatever way you can. Financial support will go directly toward the care, services, and equipment he needs. But just as important is your time—stopping by, helping with things around the house, running errands, or just being there. He’s obviously not the talk-your-ear-off type anymore, but he still loves interaction.

Dave has never been the kind of person to ask for help. But he’s the first person to give it.

Let’s make sure he’s not doing this alone.”

Aaron Holloway

Best Man, Best Friend - Director of Digital Marketing at Fielmann USA

Rated 5 out of 5

I see how hard Dave works to fight this disease every day. The fact that he saved my life means more to me than he will ever know! I love him so much and I’m so happy to be by his side 24/7 traveling, making memories and having fun! I would LOVE if you could help donate so he could get a few more years added to his life! That would mean so much to not only me but him as well! Thank you so much for your support and donation, please spread the word and tell your family and friends. We appreciate each and every one of you!”

Stephy Rose

Caregiver & Best Friend

Rated 5 out of 5

I had just finished my first day of spring yard work when Dave told me he planned to get a tracheostomy. Suddenly, being exhausted from my least favorite chore felt like a privilege. What a privilege it is to be sore from manual labor. What a privilege it is to shower unassisted afterward. What a privilege it is to eat without fear of choking. As the privileges became more and more basic, I realized what a privilege it is simply to breathe and swallow without even thinking about it. In a world where he’s lost just about every other ability that most of us take for granted, a tracheostomy would take the fear out of simply breathing and help Dave live a longer, safer life. As someone who lost their own mother to ALS, I know all too well how horrible this disease is. If you can donate even a small amount, it would be greatly appreciated.”

Megan Foley

Tier 1 Friend - Senior Director, Client Solutions at Merkle

Rated 5 out of 5

These last couple of years have been very difficult. First, I was falling & sick enough, that I was put in palliative care. Then, my husband (Gordy) started being sick and falling, until he finally passed away last July 25th (2025). During the things we were going through, our son (Dave) was diagnosed with ALS or Lou Gehrig’s disease. For those who don’t know about this horrible disease, it is the worst condition a person can go through. I’ve seen my son go from a healthy, motivated, active young man, to someone who is stuck in a wheelchair, not able to do anything physical. ALS robs you of doing the physical things you take for granted. Dave can’t even scratch an itch! ! He’s lost so much! We thank God that he has a wonderful caregiver, who helps meet his needs. He also has friends who will stop by to help.

I’m writing this today because Dave has been told that his life expectancy is no longer measured in years, but in months unless he has a tracheostomy. We truly do not know how much longer we have Dave in our lives. If Dave has tracheostomy, there’s a good chance he can live a few more years! It would be such a blessing to have him live a little bit longer. The only problem now is, the out-of-pocket nursing costs after surgery is extremely expensive. We just don’t have the money to keep him alive. Some of us have decided to start a Go Fund Me Page. Any amount will be appreciated.

Thank you for taking the time to read this. “

Sandi Janisse

Mom - Retired 3rd Grade Teacher, Roseville Schools

Rated 5 out of 5

Dave has always been the kind of person who shows up for others. He’s spent years bringing people together through sports leagues, events, and fundraisers, while quietly going out of his way to help friends, family, and anyone in need. Whether it was lending a hand, offering support, or raising money for someone else’s hardship, Dave never hesitated to step up. Now Dave is the one who needs help. He’s given so much to so many—it’s our turn to rally around him and give back.”

Scott Trahey

Mentor - Senior Business Solutions Architect at Adobe

Rated 5 out of 5

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My ALS Journey

On this page I describe what ALS is, how it started for me, and the things I have encountered along the way.

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is the average cost per year to live with ALS after having a tracheostomy

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of ALS patients choose not to extend their life with a tracheostomy due to the high costs

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-day disease" is one of the well known nicknames for ALS